This November for National Epilepsy Awareness Month (NAEM), ECHO Connection encourages you to learn more about seizure disorders and the potential therapeutic application of cannabidiol (CBD). NAEM – spearheaded by the National Epilepsy Foundation — is meant to help raise awareness about epilepsy and seizures, which affect about 1 in 26 people at some point in their lives.
Epilepsy is a neurological disorder characterized by nerve cell activity in the brain becoming disturbed, causing seizures. The fourth most common neurological disorder affects people of all ages, and can cause other health problems. Epilepsy is considered a spectrum condition, because seizure types and control vary widely from person-to-person. A person is diagnosed with epilepsy if they experience two unprovoked seizures.
CBD’s Potential Benefits for Epilepsy
Through generous donations, ECHO Connection is able to provide families facing special circumstances with the healing properties of CBD. CBD is a non-psychoactive cannabinoid found in cannabis plants like hemp. Many of the ECHO Connection sponsored families who are using CBD oil products have children who are diagnosed with pediatric seizure disorders.
Over recent years, researchers have found exciting evidence suggesting that CBD may have the capability to safely reduce, and in some cases completely eliminate, seizure activity. The cannabinoid has even shown in studies to potentially reduce seizures in conditions that had been refractory to traditional seizure treatments. While scientists are still investigating the mechanisms underlying CBD’s potential seizure-reducing properties, evidence suggests that its effects are related to a multifaceted approach.
Here are just a few of the recent study findings on CBD for epilepsy:
- Study: CBD Reduces TSC-Related Seizures
- American Epilepsy Society Study Finds CBD Effective for Reducing Seizure Frequency
- CBD Demonstrates Efficacy for Reducing Seizures in Children in First Clinical Trial
CBD on the World’s Stage
ECHO Connection family member and world-recognized CBD advocate Raul Elizalde has been invited to speak to the United Nations about CBD next week at the World Health Organization (WHO) Thirty-Ninth meeting of the Expert Committee on Drug Dependence (ECDD) in Geneva, Switzerland. The WHO Committee will be reviewing the international scheduling 16 different substances, including CBD.
Raul will be sharing with the committee the story of his daughter Grace, who at a very young age was diagnosed with Lennox-Gastaut syndrome, a severe form of epilepsy. After no treatments would control her constant seizures and convulsions, Raul and his family were the first in Mexico to sue the federal government and win the right to import CBD hemp oil to treat their daughter.
Since winning the right to import CBD into Mexico for his daughter, Raul has become a renowned CBD advocate. He started the Por Grace Foundation to expand access to CBD, and the grassroots movement he spearheaded eventually led to him being asked to be beside Mexico President Peña Nieto when he signed a new medical cannabis law into policy in June.
Raul will speak in front of the UN on November 6th from 9:00am -11:00am. If the committee recommends that CBD be considered a non-psychoactive substance, legal access to the compound would expand worldwide.
This Year’s NAEM #AimForZero Campaign
The focus of this year’s NAEM month-long event is the #AimForZero Campaign, which is meant to educate people with epilepsy and the general public on Sudden Unexpected Death in Epilepsy (SUDEP), which is when a person with uncontrollable seizures dies from sudden unexpected death. The movement encourages those with epilepsy to follow four actions to reduce the risk of SUDEP:
- Take medication as prescribed
- Get enough sleep
- Limit alcohol
- Strive to stop seizures
You can learn even more about CBD and its potential therapeutic benefits for epilepsy by visiting our education page.