ECHO Connection is thrilled to support our first ever medical grant and we need your help. Our very first ECHO family, Harper Howard suffered from a genetic disorder called CDKL-5. With the addition of CBD to her diet, Harper was able to grow and develop in ways that amazed her medical team, caregivers and family members. Harper was a light to this world and left us too soon. Harper’s parents Dustin and Penny Howard made the heroic decision to donate Harper’s brain to science and the results have been nothing but spectacular.
Scientists are finding links between CDKL-5 and Alzheimers and have also been able to study the effect of CBD on the health of Harper’s brain. Early lab results show that cannabidiol may have a positive therapeutic effect in CDKL5, namely decreasing seizures and normalizing both social and mental functions. However, the lab needs to more thoroughly examine the exact dosing and mechanism of this effect before they can move forward with a clinical trial for CDKL5 patients.”
Would you please help us to advance this exciting science? Our goal is to raise $15,000 and ECHO Connection will match each dollar raised for a total goal of donating $30,000!
We invite you to sign-up for your own gift and then commit to raising money through your circle of contacts. Teams working together can create an ever more powerful effect. Your leadership in this fundraising effort will have a direct effect on this new area of scientific research.